Saturday, May 26, 2018

so much rain


It's been almost two weeks straight of torrential rain, supposedly over 10 inches, with another 4-8 falling this weekend from Subtropical Storm Alberto.  I've had migraine after migraine, although I've caught a break the last 3 days.  Instead of a full-blown migraine, I've only had the prodrome with irrational emotions and excessive fatigue.  I snapped at my sister (sorry again!) and have been sleeping on and off about 10 hours a day, with just enough energy when I'm awake to feed Kitten and sometimes myself.

Washing my hair has become non-essential with my pittance of energy levels, so it looks atrocious, especially because I've been lying down on it.  One day, I'll splurge and buy a silk pillowcase to see if that helps my hair the way people claim.

Saturday, May 19, 2018

here, there be dragons


There was another #PokemonGOCommunityDay, starring Charmander this time.  It's a dragon in case the title didn't clue you in.  Last month I made friends with other players, and this month I felt part of the group.  Yay.  I was even invited to join in their pot luck at the park.

The bad news is that we are under Flood Watch because it's been raining for a week straight.  I've had migraine after migraine after migraine this week, but not one during the event.  Yay!  I got out my umbrella to take with me and realized that it would be hard to hold an umbrella and still play the game on my phone.  So I opted for the waterproof phone case instead.  I wore clothes and shoes that could get wet and went to play in the rain.

Holy smokes, I got soaked!  Except for my hair, which was still dry underneath because it's so thick.

It was kind of hilarious to see so many adults playing video games in the rain.  I saw one little girl who looked miserable, huddled in her jacket against the rain, while her parents were catching 'em all.  I gave her a big smile, but she was having none of it.  Mostly it was adults.

And most had an umbrella.  I bet their arms were cramped after a couple hours of holding it in that position.  I was happy with my choice to forego one because it was fun being carefree and getting rained on.
 

Shiny Charizard (the final evolution of Charmander)

Thursday, May 17, 2018

CELEBRATION!


The first ever migraine preventative medication was FDA approved!!  It's the shot I've been clinical trialing for the past four years.  I've had so many friends and family texting me with the good news.  It makes me both happy and sad to be remembered.  Happy because someone cares enough to think of me.  And sad because that's how people know me, migraines so bad that a new medication is announced and OMG LET'S TEXT WENDY.

A journalist wanted to interview me for an article, but my doctor's office asked that I not do that.  I regretfully declined.  It's all proprietary protocols, I guess, not that I know anything of what goes into it.  I barely know the dosage.  I'm not usually one to be in the spotlight, but I feel strongly enough about migraine to override that concern.

I also feel like I'm disappointing my friends and family when I tell them that it didn't cure me.  Yes, I have improved, but only enough to take care of myself, not enough to hold down a job.

Tuesday, May 15, 2018

midnight plumbing


As I was getting ready for bed last night, I heard the toilet cycling through and refilling even when I hadn't used it.  After searching online and texting my friend, I figured out what the problem was.  I watched several YouTube videos and am now an expert.  However, I decided to leave it alone and get my beauty rest.

I watched one more YouTube video where he said I maybe don't need to buy a new canister seal, I could just wash it off and reseat it.  I didn't save that video, but he should get the credit because this morning, I did exactly that.  And the toilet stopped cycling through the refill phase.  Go me!

If it happens again, I can easily buy the piece and replace it.  Thank you to everyone who makes YouTube videos and easily explains what goes where and what needs to be replaced and how.

Monday, May 7, 2018

price of admission


Never regret the price you pay to become who you are.  

I love this quote from Iain Thomas.




Thursday, May 3, 2018

DENIED!


Irony is anxiously waiting every day for the mail to find out about my social security disability approval process, and then skipping a day because I was too disabled to WALK OUTSIDE TO MY MAILBOX and finding the letter the next day saying I was denied.

Their letter:
"We understand you have some challenges with your condition according to multiple doctors, but we don't have migraine on our approved list, so you don't qualify and kindly go fuck yourself."

I might be paraphrasing what they said, so I should probably remove the quotation marks.  But according to the tears running down my face, that's what my brain assimilated.

The good news is that I was able to get to the mailbox today.  Yay for less pain and not thinking the sun is the epitome of evil.  The bad news is I started crying while talking to a lawyer because my brain was so fuddled that I didn't understand his question asking if I could work a full-time job.  But, hey, no, I'm sharp as a snail and can easily hold down a job.  GODDAMN FUCKERS.

Deep breaths, Wendy.  Crying might wake the monster again.